Follow Alexandre LIVE as he runs Kyoto marathon for Team Unstoppable Nina. Thank you Djamila, Alexandre and family for your support!
Nina had some great birthday party fun! Disney themed and all, we had a great time seeing everyone that could make it and Nina loved playing with her friends, eating cake, and opening all of her fun gifts! Thank you to everyone that came to celebrate!
So today was a big day for little Miss Nina – she turned 3! Every birthday is such a special time for Nina and other kids with Mito (and other “rare” diseases). We have had such an amazing third year with Nina and will forever cherish the memories we made with her. We are so […]
Back from our Team Unstoppable Nina trip to Walt Disney World and slowly getting settled back into a world without the Magic Kingdom. Huge thanks and congrats to Kim Conlon Siragusa for the great marathon finish and fundraising for the team! Here is a group shot we were able to get on a day at […]
We are excited to announce we have partnered with Julie Freyermuth (a friend of Kim’s) and Virginia K Freyermuth Ph.D. in support of their book, “Norbert – What Can Little Me Do?”. We were touched when Julie reached out to us after hearing about our little Unstoppable Nina. She wanted to help Team Unstoppable Nina’s […]
It is that time again – time for another race for Unstoppable Nina. This time we are heading to the Disney World Marathon on January 11th to run with and support team members Kim (Conlon) Siragusa, Michelle Conlon, and family. We love this great show of support from some of our Boston team members!
We are so honored to report that our first fundraiser for Team Unstoppable Nina was a success well beyond our initial hopes, and for that we owe all of you a great, big THANK YOU! Our race day turnout was amazing. We had 26 runners and walkers and even more friends and family that came […]
Dear friends and family, Help us help Nina – and thousands of others – please join or donate to Team Unstoppable Nina! Our 2 year old daughter, Nina Hall, was diagnosed with a terminal, life limiting disease in 2013. Throughout the course of the year our “diagnostic journey” took us down many twists and turns, […]